18 months and counting

Has it REALLY been 18 months already? Sylvie had her 18 month appointment earlier ths week and her currents stats are as follows: weight 18lbs length 30" teeth 4 She's still a wee thing, (no surprise there), but she's following the growth curve and developmentally she's ahead of her age group in everything but gross motor skills. She has finally started to take a step or two every now and then though, so hopefully she'll catch up in the regard soon. 5 and a half hours with a toddler on one's lap is no easy thing So Sylvie and I are currently hanging out with Auntie M, Uncle T and cousin J in sunny Seattle, WA. Yes, I said sunny. (Contrary to popular opinion, it doesn't actually rain every day here, ya know.) We flew in late Wednesday night/early Thursday morning and boy, were my arms tired. It is not a picnic trying to contain a bouncing ball of toddlerness in one's lap for several hours and then when she finally zonked out, it was almost impossible for me to get into a comfortable position wihtout disturbing her. I spent almost the entire flight assuming various pretzel-like contortions at sloth-like speed, hoping in vain to find a position that wasn't going to give me back spasms. At loooooooong last, we finally made it back to terra firma without any whiny child induced air rage or permanent damage to me. The Chubaliciousness of baby J Let me just say right now that baby Jack is the cutest boy in the whole wide world. All big eyes and chubalicious thighs. It's funny how while he isn't really a chubby baby per se, he has Michelin Man-like thighs. His thighs are pure squishtastic, chewy, nummy goodness! Sylvie just loves her cousin J and we've already gotten some adorable photos of the two of them together. 

Update, including another ER visit

Signs, signs, everywhere signs Sylvie has added several more signs to her repetoire including: grapes potato grass laugh pear peach car strawberry walk carrot One morning recently she woke up around 6am, which is quite early for her (and us!) so I brought her to our bed and tried to coax her to go back to sleep for a little longer. I signed, sleep more please to which she responded, also in sign, milk please thirsty. How could I say no to that? In sickness and in health A little over 2 weeks ago, our girl woke up in the morning crying for no apparent reason and it took quite a while to console her. She felt hot but when I tried to get her temp, she was too fussy and wiggly for me to get an accurate reading and since she seemed to rally later that day, we put it off to teething. But that night she had a great deal of trouble sleeping, only nodding off for short periods of time before waking to cry fitfully for longer periods. I brought her to bed with us in hopes that she would be soothed to sleep more readily but it didn't help. Theron tried to help out with soothing her but she preferred to be glommed onto mommy 99% of time...which continued for the next few days. As did the whining, crying and fever. I managed to get a temp on Thursday morning and since it came up as 102.2F we called up her pediatrician who had us come in immediately. We'd given Sylvie baby Tylenol so by the time we got to the doctor it had kicked in and while she was still quite miserable, her temp was much lower. The doc checked her ears and throat which (at the time) looked fine and asked us to try and get a urine sample...no easy feat with a 17 month old girl. There we were in the examination room; me holding our miserable, crying naked child on my lap, atop a puppy pad to soak up any urine which might miss the specimen cup that Theron held to try and catch the flow...which didn't come and didn't come... About 40 minutes into this excruciating activity, the doctor told us that she wanted to get a blood sample (joy) from Sylvie and that we could try to get the urine sample again back at home. During our second attempt at pee-catching, we received a call from the doctor around 5:30pm saying that the test results were enough of a concern that (double-extra-super-happy-joy) we should take her to the ER for further tests. It wasn't an emergency per se, but we needed to get there sooner rather than later. To sum up our most recent oh-so-enjoyable- visit to the ER: It was almost a carbon copy of the first time we were there. Once again, they used a catheter to get a urine sample (during this lovely procedure, Sylvie's eyes got very big and she frantically signed ALL DONE , which was somehow, both horrifying and funny at the same time) and more blood drawn had to be drawn and she received, that's right folks, ANOTHER IV FOR DEHYDRATION. I'd been doing my best to get her to drink and I thought we were doing pretty well but I guess because of her fever she'd been sweating it out almost as soon as she took it in. She was only slightly dehydrated but since she's so small, it was judged best to get her fluids back up asap. The worst of it is that she'd been rallying up to the point when they came to do the needle pokes, and was acting quite like her usual self...but we were soon both bawling our eyes out as the needles were put in her tiny arm. HOW I HATE THAT! None of us had been getting much sleep for the past several days and Sylvie was doubly depleted of energy having just shrieked her lungs out so all three of us pretty much zonked out in the little room they'd put us in for her treatment; Sylvie and I on the bed and poor Theron in a less-than-comfy chair. The nurses came in to check on us periodically and finally after a few hours the doctor came in to say that all of the test results looked normal so far but that they would need to 'cook' for several more hours to be sure they were all clear. Since Sylvie was now rehydrated to the max and her fever was responding well to the Tylenol, we were finally sent home around 12:30 am with instructions to keep Sylvie hydrated and her fever down (well, duh), and to follow up with our pediatrician the next day. Upon examining Sylvie for the second time, the doc saw inflamation in her left ear and deduced that all of this grief and agony had been the result of a developing ear infection. I know it sounds as if she was a bit extreme in checking Sylvie for more serious problems but she told us that because of Sylvie's heart defects, she wanted to rule out an infection in her heart. I never thought I'd type this but, Hooray it was only an EAR infection! We were given a prescription for amoxicyllin and told to come back in a week to follow-up. But WAIT...there's MORE! Sylvie started acting more like herself after having been on the meds for a day and a half but we noticed that her skin seemed to be turning a blotchy, red color. It wasn't raised and didn't make her itch but we called the nurse help line and were told it was a fairly common non-allergic reaction to the medication and nothing to worry about. However, the next day I noticed Sylvie scratching at her thigh where a lovely, welty, hive had reared it's ugly head...and like magic several more popped up on her body. Once again I called the nurse help line and this time I was advised to stop the meds, give her some children's Benadryl and check in with her pediatrician when she was back in the office on Monday. Long story short (ha), the doc called in a new 'scrip to our local pharmacy, we dosed the kid up as per directions and today she appears to be fully recovered. Hurray! All's well that ends well, indeed. M is for MEL-MO During this time of illness, Sylvie was sorely lacking a 'wooby' or comfort object to cling to in her misery (well, other than me). This is not because we have no dolls or toys (ha!) but none that she has any particualar attachment to. BUT...she did request the presence of a certain red-furred, high-pitched-voiced monster who goes by the name of "MEL-MO" who you probably know as Elmo, a popular Sesame Street character, and yes they are one and the same. In fact, Sylvie met Elmo early in her life while visiting Sesame Street and stumbling into a fantastical place called, "Elmo's World," a place so amazing that it has it's very own theme song! That gets caught in your head and buzzes around and around inside ones noggin like a psychotic bee! Yes, Sylvie had fallen hard for MEL-MO and it was his sweet furry countenance gazing at her through the TV that helped to sooth her in her time of need. And when MEL-MO was not to be found on the TV, why, he was easily discovered on the internet! Sylvie would lean into the comfort of the chest of her father or I while happily murmuring, "Mel-mo...Mel-mo..." over and over again. Now that she is all better, her MEL-MO fixation continues. She has noticed that MEL-MO appears on her diapers and tells us so each time we change her. She asks for her MEL-MO bath toy when bathing and upon wakening each morning, points out her bedroom door towards the livingroom and the TV and says...what else?..."MEL-MO". I have it on pretty good authority that Santa is bringing her a MEL-MO doll for Xmas this year.

As promised...a nice, long update!

I apologize for my long absence. I know that I have let some of you down by not keeping you up to date with Miss Sylvie's progress and for that I am truly sorry. Now you can quit your yammering (mom) cuz here it is. Signing Time Sylvie's vocabulary continues to expand both in sign and in spoken word. As you may have seen from the June photos we are the type of parents who allow our child's brain to be corrupted and shriveled by regular tv watching. Well, regular dvd watching anyway. We are big fans of the Signing Time series and watch an episode almost daily. I'll ask Sylvie "What time is it?" and she gets very excited and signs time repeatedly then speed crawls to the tv where she signs time continuously until I start the show. As the signs are introduced, they are demonstrated very clearly by the host Rachel and then we're shown them being used by other adults, kids, toddlers and even infants. After a series of signs have been shown, there is usually a catchy song about using them. Theron and I watch it along with her and as a result we've all learned quite a few signs which we use with her throughout the day. I've been trying to jot down a list of signs she uses on a regular basis so that I can relate them all to you folks. The words that she also speaks, I'll put in parentheses her current spoken pronunciation. Here they are in no particular order: baby (baybee) time cracker (da-dur) cookie diaper (bi-pur) mom (mom/momma) dad (dah, dah-dah) more (mo) milk (mih) thirsty (tee) eat/food dog (dah-gee) cat (kih-tee) bird (bir)--funny story about this one. One day a few weeks ago, we were looking out the window during a torrential downpour when Sylvie started to sign bird. I looked and looked but didn't see any birds and thought it strange that one might have flown by in such heavy rain. Sylvie kept signing bird though and then I noticed that the postal truck was parked in view. Could it be that Sylvie recognized the highly abstracted eagle logo on the truck as a bird? There's no way I can know for sure but I'm just gonna say yes; our kid is a frickin' genius. bath (ba) ball (bah) cheese (teeze) apple (ba) banana (nanna) clean (kee) bear (buh) day sleep friend (Airwah)--well, Sara IS her best friend after all book (buh or booh)--Sylvie LOVES to be read to. Over and over and over again. Sometimes we even get to the end of the book but usually she'll bring us a book and we'll start to read it, but she'll crawl away to get another book for us to read. Rinse, repeat. hat cold strong--she only does this in response to us asking her "How strong is Sylvie?" Our follow up to "How big is Sylvie?" hot train all done/finished (done, done?) no (nonononono)--she is already showing signs of being a bit bossy (yeah, mom, just like I was) and will reprimand the dogs when she sees them doing something we've told them (or her) not to. shoes please (pee or eeze) thank you (chank chew, tank koo) boy--Once when Theron was playing with Sylvie, he said "oh boy!" trying to get her excited about a particular toy. She then signed boy for the first time. wash hands potty *poop--small confession...this one we actually learned from Meet the Fockers She's actually begun to string signs together in 2-4 word sentences like: more milk banana please and just this morning we got: more time banana thank you Koko the gorilla would be so proud! Click here for an excellent site that has short video clips demonstrating all of the above signs plus a gazillion more. I highly recommend signing with your babies. And why stop when they can talk? I think it would by nice to keep it up...it never hurts to be bilingual! Although technically since sign is not spoken maybe it should be biling/manual? G-tube? We don't need no steenkin' g-tube! When we last saw Sylvie's GI, we were given the great and glorious news that she no longer thought it necessary for Sylvie to get a g-tube--insert bells, whistles, air horns, trumpeting elephants of joy, etc here. The doctor had gotten a hold of a growth chart specific to Noonan Syndrome and while Sylvie is only in the 3rd percentile for weight on the general chart, she's actually 50th percentile on the more appropriate chart. I think this helped drive home the fact to the GI that kids with this syndrome are just smaller, but not necessarily in a bad way. Since Sylvie is length/weight proportionate and developmentally on track in everything except for gross motor skills (which she is quickly closing the gap on; more on that later), the doctor saw no need to resort to surgery to try and increase her caloric intake. Another thing that I've noticed, along with my friend Marla (Sara's mom) and many other parents of Noonies is that they are ALL small, no matter how good or bad their appetite or whether or not they have feeding issues. Case in point: Sylvie and Sara are a month apart in age, with Sylvie being the elder. Despite the fact that Sylvie has consistently taken in many more calories on a regular basis than Sara, they are only about 1lb. apart in weight with Sara being the scale tipper! I've said it before and I'll probably say it again (because I suck at coming up with new material) but I think that a lot of the calories Sylvie takes in goes to her hair. Well, it's the only explanation I can come up with as to how she stays such a skinny minnie when she eats like a horse most of the time. Bleedin' good news On advice from our pediatrician, we'd had a series of blood tests done to check Sylvie for bleeding disorders which are commonly associated with Noonan Syndrome. Our most recent trip to a doctor's office ( I say 'a' instead of 'the' since she's has so many different ones) was with the Hematology department at Children's Hospital for follow up blood work because of an abnormal result in a platelet aggregation test, (not excess platelets as I had originally thought). The doctor was very nice and explained that all of the other tests had looked fine but they wanted to recheck this one thing to be on the safe side. Long story short, (yeah I know, too late) the follow up test was a-ok! Woo hoo! We'll still have to have her rechecked before any surgery, but we don't have to worry about adding a hematologist to her list of regular specialists for the time being, thank goodness. Sylvie's most recent measurements were taken at this appointment and she weighed in at 17# 2oz and was 28" long. (Either she shrunk an inch and a half since her 15 month appointment with her pediatrician or the nurse who measured her then was just reeeeaaly sloppy when she did it.) Poop, here it is On three separate occasions now I've gone in to Sylvie's room, hearing she's awoken from her nap, to find that she's decided to do a little exploring. In her diaper. Which was FULL OF POOP. She'd be sitting in her crib, proud as can be, murmuring in her sweetest voice and holding out a stinky little butt nugget for me to see. I guess I'm lucky that each time she's done it the poops have been nuggety and not squishy since that would have made the experiences all the more disgusting. Hopefully there will be no more visits from Mr. Hanky. Fun and Games Sylvie has learned a new game from her Thursday playgroup called Where oh where has gone? (basically, it's Peekaboo!) At playgroup, this game involves sitting in a circle and taking turns putting part of a mini parachute over one of the kid's heads while saying the "Where oh where?" chant, followed by the chosen kid pulling the material down to reveal him/herself while everyone else (read: playgroup leader and parents) exclaims, "Peekaboo!" Sylvie will play the "standard" way at home, hiding behind her bib/shirt/skirt while saying "way oo way" and then grinning hugely when she reveals herself to our peekaboo! chorus, but she has also extended the game to objects, handing us a ball or toy while saying "way oo way", indicating that we are to hide it so she can find it. Last week, I heard her saying her "way oo way" to her EI therapist during a session and when they were looking at a book with characters hidden behind panels that opened up on each page. Standing up, falling down She's VERY close to walking and is standing independently of longer and longer lengths of time. Ok, so those 'lengths of time' are less than a minute...but she IS getting better at it. She's finally gotten big enough to ride her little car from G'ma & G'pa Johnson, although she has yet to master turning corners with it. She loves to climb up slides and stairs. She also thinks she can go down stairs head first...as I found out about a week ago much to my horror. Theron volunteered to look after our friend's Sean & Amanda's pets while they are away on their honeymoon. We've got Sadie the dog at our place but stop by S& A's house every other day to check on their cats and fish tanks. Sylvie started off after one of the cats who decided to flee up stairs. I allowed Sylvie to follow with me close behind, making sure she was safe. Ha. We'd reached the top and the cat had disappeared into a room and Sylvie was gesturing after it and signing/ saying kitty over and over. Thinking she wanted to continue the chase, I started after the cat saying the "Where oh where is the kitty?" chant...thus committing the ultimate act of stupidity by NO LONGER BEING BETWEEN SYLVIE AND THE STAIRS. Of course, Sylvie decided it would be much more fun to go back downstairs and I wasn't able to catch her before she fell. I cannot even begin to say how horrifying it is to see your tiny baby fall end over end down stairs. I shrieked something like, "SYLVIE! OHMYGOD!" and Sylvie just shrieked. I ran down to Sylvie and scooped her up in my arms and I just held her...too frozen with shock and terror and guilt to check her for injury. Theron had come running having heard the thuds and the shrieking seeing us rocking halfway down the stairs immediately knew what had happened and very gently took our crying baby from me to see if she was hurt since I was clearly not in the any state to do so. Nothing appeared to be broken. In fact, she had not one bump, bruise or scrape from the fall. She was fine. She was fine. She was fine. My self confidence as a parent, however, will probably be in a full body cast for quite some time. I know it's one of those things that can happen on occasion, even to good parents, but that doesn't make it ok that I was careless. Thank-any-and-all-deities she wasn't hurt. So there you have it folks I came, I blogged, I confessed. Hopefully you will have seen that aside from the horrible-falling-down-stairs incident, things have been going exceedingly well with our wee girl in every respect. She continues to be of angelic demeanor about 99% of the time with only rare and brief flare-ups of temper, mostly due to frustration. She does get a little grumpy when we tell her no sometimes but so far we've not had any real tantrums. I am under no delusions that we'll be able to avoid them completely...I'm sure Tantrum Sylvie is there, lurking in the shadows, waiting to go all Vesuvius on us in the middle of a restaurant or mall or--heaven forbid--an airplane. But I'm getting ahead of things. Right now she is our little curly-headed-sweetheart-genius-baby. July pictures coming soon!

15 Month check-up

Sylvie had her 15 month pediatric appointment today and --Huzzah!-- all we heard was good news. Her currents measurements are 29.5" long and 16#10oz. which puts her in the 15th and 3rd percentiles for height and weight respectively. Dr. G was very pleased with her growth and also with her language skills which, according to her, are rather above average. Dr. G was then moved almost to tears (I kid you not) when after having apologized in advance for having to give Sylvie two shots, Sylvie hugged her and gave her a comforting pat on the back. (We didn't tell her that Sylvie almost always pats a person on the back when they hold her). Of course, poor Sylvie still screamed her head off when she got the shots, but she recovered quickly. The doctor said that based on Sylvie's current rate of growth length-wise, she would quite likely reach a final height of between 5'-5'5". If this proves to be the case, then I guess she won't be so "wee" after all!

May Sylvie update

Our gal is doing very well, in every way these days. She's crawling like a pro now and almost ready to start walking. She conitnues to add new words to her vocabulary, both vocal and sign, and has developed some very cute habits, such as: "talking on the phone"-- said phone being her playphone, a spoon, a toy, a doll or even her own fist. She will jabber away, quite aggressively, in a language that sounds like a cross between Russian and Klingon until she very sweetly says, "bye!" Trying to get her to talk on an actual phone when someone is on the other end is another story however as she would rather just push the buttons. "ticky,ticky"-- whenever we tickle Sylvie we have taken to saying "ticky, ticky" while doing it. She has adopted our habit and loves to poke us in the ribs or belly while saying "ticky, ticky!" "good doggy...I mean daddy"--sometimes Sylvie decided that we have been especially good parents and favors us with head pats. She'll gesture for Theron to bend his head toward her and she will pat it. Then she will do the same to me, and the cycle repeats numerous times. All the while she murmurs approvingly because we are such good doggies...I mean parents. "feed the parents"-- this actually started a few months back but I don't believe I've written about it yet. Sylvie likes to pretend to pinch off our moles (and in Theron's case chest hair) and then pretend to feed them to us. Sometimes she "snacks" on them herself. Disgustingly cute or cutely disgusting? You decide. Speaking of feeding, Sylvie has begun to catch up some on her weight gain. At her last appointment with her nutritionist, we learned that she had gained 2lbs in two months (yay!) and is now back on a growth curve, if still below the 5th percentile. We also saw her cardiologist this past week and he said that things looked the same as before so no immediate steps needed to be taken to address her heart defects. We go back to see him in a year for another checkup and to discuss plans for her surgery, which will probably be done sometime before she turns 5. He has assured us that the surgery is quite common these days so, while we're not thrilled with the prospect, we know that she needs to have it. Next week, Sylvie sees her pediatrician for her 15 month checkup and a week later, she'll see her GI again. I'm hoping that the GI will no longer see the need fot a gtube once she's seen how well Sylvie's been gaining weight on her own. Keep your fingers, toes, eyes...whatever you can cross, crossed!

A tooth! A tooth! Finally a tooth!

Sylvie has experienced two breakthroughs this month: 1) she can pull herself into a standing position and 2) her lower left central incisor! Ladies and gentlemen...she FINALLY HAS A TOOTH! And it looks as the the lower right central incisor will be popping through the gum any day now as well. Luckily, she's had no obvious discomfort while teething and I'm hoping that holds true for all the rest of the pearly-whites-to-be. As for the weaning, it has gone extremely smoothly for both of us. I had the one bad day early on and I finally went ahead and boobed Sylvie to ease the pressure. Then we went another couple of days without and I developed a sore spot on one side, (presumably a blocked duct), that I again relieved with nursing Sylvie. I coud tell though that my milk was just about gone. At this point, I'm pretty sure that the dairy has closed down until future child(ren). Bye bye, boobs....Thaaaaanks foooor the maaaamarieeees...hyuck, hyuck.

March update

A lot happened with Sylvie this past month: She turned one, travelled to Savannah for the first time where she finally got to meet her Uncle T, attended her first bridal tea and (extra-utero) baby shower, had her hair cut, started bah-ing when shown pictures of sheep, learned how to sit-up all by herself AND...she's started talking to us in a second language--well third if you count baby jabber--by signing! So far she knows the signs for "more" and "milk". Sylvie and pal S also had their first visit to the Children's Museum.