Wednesday, September 26, 2007

Sylvie's Surgery Care Page. Read the daily updates.


(Theron filling in for Paige) With no allowance of cell phone usage and spotty wireless internet reception inside the ICU, we haven't had a lot of contact with the outside world for updates on Sylvie's condition. We are sorry about that. Paige started up a Care Page (you'll have to create an account first) for Sylvie where we can update on the odd moment we can get away from the room. Invites for the page were sent out to everyone we could think of...only to find out lots of folks never got them. So if you are interested, take this time to jump over to the Care Page and read the details as the unfold.

Tuesday, September 11, 2007

Happy *28th* Auntie Manda!

Long overdue update

Hi all.
I know I've really not been great about keeping up with the blogging for several months now and when I have it's been mostly "hey look what I can do" type stuff when I know that all you really want to see is "hey look what Sylvie can do!"

The answer to that is A LOT.

She's like a little monkey these days, climbing on and off furniture and up and down stairs...with supervision of course. She loves running around in our back yard or taking a stroll around the block. Unfortunately, she also loves picking things up off the floor/ground: hair, rocks, dirt, sand, lint, paper...this kid will eat almost anything if I don't keep an eagle eye on her. Even if I do keep a close watch, she's so quick that I still have spent time scooping crud out of her mouth. GAH! I hope this phase ends soon. I understand that small children learn a great deal via sensations but I just wish our child didn't favor so many new 'taste sensations' of non-food items!

She has long been over her Elmo obsession and now prefers the Teletubbies. She'll drag me to the TV at various times of day demanding, "Tubbies! Tubbies!" and I have to explain to her again that we don't have Tivo or On Demand (or cable) like our friends so we can only see the Tubbies at their regularly scheduled time. I fear this mostly goes over her head at this point though, heh. She doesn't much care for when the Tubbie tummy TV segment happens, but she performs her signature dance move (spinning in a circle) when they do their little synchronized dance. She has a Po doll that she loves and calls "Tubbie" and a Teletubbie book that she never tires of having read to her.

When she sees her reflection she says "Sylvie!" and when she's in the mood, she loves to give kisses. She'll turn your face to hers and purse her lips while making an 'mmm' sound. After you kiss her, she'll push your face away, then turn it back to her and repeat the process, sometimes several times in a row.

Her two most favorite toys right now are Bruin Bear and her Touch and Teach Busy Books. She asks for--and will play with--these all day long if we let her. It was a little monotonous for me at first but now I can pretty much block them out. (They tend to make Theron a little crazy however.)


My least favorite subject that I can't stop talking about
Surgery day (Sept 24) fast approaches...too fast and yet not fast enough. I don't want it to happen at all, but since it has to I want it to be OVER. We got our "Congratulations! Your child will be having open heart surgery with us soon!" packet in the mail from the hospital recently. It contained several brochures on the various areas of the hospital that we'll be intimately acquainted with. Sylvie's pre-op appointment in Sept 21 and will last 6-8 hours as they do various tests which may include while not limited to: echocardiogram, EKG, chest x-ray, blood work, cardiac MRI and lung scan. We will also meet with members of the cardiovascular team (which may include): cardiologist, nurse practitioner, cardiac anesthesia, cardiac surgeon and child life specialist. If we so desire (which I think we will) we'll be able to tour the Cardiac ICU and Cardiac Step-Down Unit. Sounds like a fun-filled day doesn't it? Then we get to go home and spend the weekend trying not to lose our shit.

While we can't help but be freaked out about the upcoming surgery, we are comforted by the knowledge that Children's Hospital Boston is a leader in the field of cardiovascular surgery, and they have a site specifically to help children and their families cope. It also helps that I have friends whose children also had surgical procedures performed there who have shared their experiences with me and have told me that both the staff and the care that their kids received were exemplary.

You can help support Children's Hospital by donating here.

In other hospitalization news
Sylvie's second cousin Abby came home today after being released from the hospital. She was admitted this past week with dangerously high blood sugar and later diagnosed with Type I Diabetes. Luckily, she's recovering nicely and seems to be dealing with the necessary life changes remarkably well for such a young lady. As someone who is needle-phobic (especially when I was a kid) I know I would have been a basket case! Welcome home Abby and know that you've got a lot of people praying for you :)

Please donate today to help fund diabetes research.


On a much happier note
Theron and I have FINALLY gotten new bedroom furniture. For those of you who don't know, we've been sleeping on our mattress and boxspring directly on the floor for over a year. We've really wanted a platform bed and weren't having much luck finding one we liked in stores so we scoured the internet until we found a great deal on 3 pieces of this set. We got the bed, the 5 drawer chest and a 2 drawer nightstand which just arrived last week.

Sylvie has some newish furniture too! We found a used set for less than a quarter of the retail price on craigslist thanks to our friend Marla. She had just acquired the same set (for $10!) on craigslist and Sylvie really liked it when we visited on Friday and she (Marla) told me she'd seen another set available. According to the guy we got it from, his family had owned it for 8 years and 4 kids and yet the thing looks hardly used at all now that Theron scrubbed off the crayon marks...for Sylvie to replace with her own!

Snake Bouquet - my second featured design on shirt.woot!

Check it out here. $10 today only, then still available for a limited time for $15.


(Non-shirt design related post coming soon, I promise.)