December update

As you already know from the previous post, the holiday this year was not the best but up until the whole hospital "adventure" Sylvie had a pretty good month, playing with her pal Sara, breaking in her new winter hat and mittens, sitting on her own for longer and longer periods (although she still needs help to get into a sitting position), and learning to wave AND clap. Theron and I are trying to teach her to blow kisses but so far she seems content to just alternate waving and clapping every few minutes. In the last few days, she's started making a new noise that cracks me up; kind of a Marge Simpson-esque growl of disapproval sound, but she usually makes it when she's intent on something. She'll also mimick me mimicking her so we'll be growling back and forth at each other, both grinning broadly the whole time. Sylvie had her evaluation with Early Intervention and we should have a therapist calling us soon to set up day and time for her therapy sessions which will be an hour or so once a week. We're also hoping to get into a play group hosted by EI which contains "normal" as well as "special needs" kids which I think is great. Tomorrow morning, we're scheduled to see a gastroenterolgist to see if Sylvie's extremely slow growth is possibly due to problems absorbing nutrients and we have another appointment with a nutritionist on Monday. I've joined an online Noonan Syndrome support group and hope to help my friend M (S's mom) start up a local group as well. There was a long thread recently on slow growth and weight gain and I was reading it and thinking to myself, "EXACTLY." It really helps to be able to to talk to people who have Noonan or who have kids with Noonan. So that's us right now. I'll try not to let such a long time go between now and my next post!